Cryptic, crippled, creative – Cryptivity
On my travels I have learned so much about the daunting lack of accessibility, the frustrations of not being able to keep up, mingle or even get to the buffet! Many lessons learned, with the worst being occasional intolerant attitudes and a general lack of disability awareness that can have a devastating impact on motivation and productivity.
Now my degenerative spinal condition has worsened over the years [probably due to overexertion!] and decreased mobility has had a huge impact on my ability to participate in events and festivals. I can no longer use my tri-wheeler walking frame, but I’m now dependant on the [deficient] NHS wheelchair to get out and about. This also implies someone to accompany me, thus doubling, tripling costs for any attendance. It hasn’t dampened my wish to continue striving for a literary career with potential success and I’m trying to raise money not only for a specialised off-roader wheelchair to gain independence and autonomy, but to eventually support another physically disabled writer.
Living with a physical impediment and chronic pain is debilitating to say the least – but I am not alone. There are many people out there, largely undiscovered and not in the public eye because of their limitations. There are wonderful writers, artists and creatives, who contend with the constant difficulties of just getting through every day, let alone find the energy, determination, confidence and finances to express their artistic inclination and confront inaccessibility when wishing to put themselves into the public domain. This is why the Cryptivity page exists – to eventually give a shout out to some of these wonderful colleagues, provide some personal insight on how to overcome obstacles along with links to organisations, and, being the vociferous kind – a few blogs along the way to help open people’s eyes to better understanding and tolerance of other’s differences. There may be a few rants as well, so be forewarned. I am the ‘Wordslinger’ after all!
By the way, I loathe the word ‘disabled’. It implies I am incapable. I certainly am not! I am just different. But each one of us is unique in our own way – aren’t we?
Visit my GoFundMe page!
I’m often asked how I manage to do so much, or receive glowing compliments about being a “such a trooper” and the amount of achievements accomplished in the five years since I started writing. There are no easy answers and many variables that a physically disabled...
Why raise money for a trip to Lapland, Finland, when all I need is the special wheelchair, some may query. Because the Four X is part of my “journey”. This is not leisure or pleasure, though I will evidently have moments of gratification; this is not a “vanity...
We have all gone travelling, haven’t we? Whether on a package holiday to relax, rest and forget daily stress, or with rucksack and a map in hand for adventure, most of us seek out the joys of a holiday at least once a year. The internet offers a plethora of deals;...
Allow me to begin with some technical explanations for those of you who have some musical notions. Try tapping out the rhythm below with your hands then accelerate the tempo!
My wheelchair travel experience is probably not the best way to start, though were some rather funny anecdotes that are stories in themselves. Patience dear reader - it can wait and will fill up quite a bit of space in the days and weeks to come. The only thing worth...
I will be travelling to Jerez de la Frontera and Seville in Spain on 29 August for 13 days and exploring the inspiration of flamenco dance and music.
As an Inscribe Writer, I was asked to send a blog for the August edition. But what could I write about? Dilemma, dilemma – should it be about my recent literary exploits, the successes and developments? Or maybe something humorous? Then it hit me, or rather rose like a swell from my gut….
In 2013, I was fortunate to interview Hassan Mahamdallie, at the time Senior Diversity Strategy Officer at Arts Council England and instigator of the Creative Case for Diversity, and Jo Verrent, who continues her tireless work in promoting disabled creatives through the Unlimited programme.
So here I am. First post on new website – all in all, a first on all accounts. Finally a “Window to the World” without leaving my reclining sofa. A means of regular communication even if I am unable to venture further afield and participate like most ‘normal’ people.